ABSTRACT
The incidence of congenital heart disease (CHD) has been reported to be 8 out of 1000 live born infants worldwide. Accordingly, congenital heart defects and rheumatic heart diseases contribute to approximately ten percent (10%) of all paediatric admissions to health care facilities in Namibia as compared to the proportion of diarrheal (3%) and acute respiratory infection (3%). Congenital heart diseases account for 9% of neonatal deaths in Namibia (WHO 2006; WHO 2009). Clearly, the situation in Namibia is grave as regard to profile of heart diseases among children. The majority of children with heart disease are from the rural areas. If they are not acute sick, the majority of these children often receive treatment as outpatients and their parents/caregivers are expected to cope with the demands of caring for these children at home. Taking care of a child with a heart disease at home is daunting task for the parents and the caregivers as extreme vigilance on their part is required. However, this degree of vigilance cannot be realized by the parents of children with heart diseases who are from the rural areas in Namibia, because there is no support system in place to enable them to cope with the demands of caring at home. The aim of this study was to explore and describe the lived experiences of their parents/caregivers as regard caring for a child with a heart disease at home and the experience of living with heart diseases by the children with the purpose to identify the needs for facilitation of coping with the demands of caring and to develop a home-based health care programme to facilitate coping with such a situation.
AMAKALI, K (2021). Investigating The Need For A Home-Based Health Care Programme In Support Of The Parents/Caregivers Of Children Diagnosed With Heart Disease In The Rural Areas Of Namibia. Afribary. Retrieved from https://tracking.afribary.com/works/investigating-the-need-for-a-home-based-health-care-programme-in-support-of-the-parents-caregivers-of-children-diagnosed-with-heart-disease-in-the-rural-areas-of-namibia
AMAKALI, KRISTOFINA "Investigating The Need For A Home-Based Health Care Programme In Support Of The Parents/Caregivers Of Children Diagnosed With Heart Disease In The Rural Areas Of Namibia" Afribary. Afribary, 19 Apr. 2021, https://tracking.afribary.com/works/investigating-the-need-for-a-home-based-health-care-programme-in-support-of-the-parents-caregivers-of-children-diagnosed-with-heart-disease-in-the-rural-areas-of-namibia. Accessed 25 Nov. 2024.
AMAKALI, KRISTOFINA . "Investigating The Need For A Home-Based Health Care Programme In Support Of The Parents/Caregivers Of Children Diagnosed With Heart Disease In The Rural Areas Of Namibia". Afribary, Afribary, 19 Apr. 2021. Web. 25 Nov. 2024. < https://tracking.afribary.com/works/investigating-the-need-for-a-home-based-health-care-programme-in-support-of-the-parents-caregivers-of-children-diagnosed-with-heart-disease-in-the-rural-areas-of-namibia >.
AMAKALI, KRISTOFINA . "Investigating The Need For A Home-Based Health Care Programme In Support Of The Parents/Caregivers Of Children Diagnosed With Heart Disease In The Rural Areas Of Namibia" Afribary (2021). Accessed November 25, 2024. https://tracking.afribary.com/works/investigating-the-need-for-a-home-based-health-care-programme-in-support-of-the-parents-caregivers-of-children-diagnosed-with-heart-disease-in-the-rural-areas-of-namibia